“They look into our world” – A qualitative study of intensive support to adolescents with poorly regulated type 1 diabetes and their families
“They look into our world” – A qualitative study of intensive support to adolescents with poorly regulated type 1 diabetes and their families

“They look into our world” – A qualitative study of intensive support to adolescents with poorly regulated type 1 diabetes and their families

Patient Educ Couns. 2024 Jun 17;127:108351. doi: 10.1016/j.pec.2024.108351. Online ahead of print.

ABSTRACT

OBJECTIVE: This article is based on a qualitative evaluation of a project offering intensive support to Danish adolescents with poorly regulated type I diabetes and their families. The article explores 1) how the project allowed for another approach to the families than what is possible in usual care at the hospital, and 2) how the nurse involved other professionals in caring for the adolescents.

METHODS: The study involved interviews with four participating adolescents, four parents, a social worker, and the nurse running the project, along with a reading of the nurse’s entries in the adolescents’ electronic patient records. Data was analyzed within the framework of realistic evaluation.

RESULTS: The findings showed that key mechanisms in the nurse’s work was her open and flexible approach to the families, the way she anchored conversations about diabetes in here and now situations, and her efforts at engaging teachers, social and health care professionals in helping the adolescents.

CONCLUSION: The strengths of the project were the nurse’s special approach to the families and her ability to engage other professionals.

PRACTICE IMPLICATIONS: A care manager providing individualized and flexible help can have positive results on the treatment of adolescents with poorly regulated type 1 diabetes.

PMID:38896892 | DOI:10.1016/j.pec.2024.108351