paediatrics
paediatrics

Where there is no genetic counselor: An online decision-aid supports the majority of parents’ diagnostic genomic testing choices for their children

Genet Med. 2024 May 30:101173. doi: 10.1016/j.gim.2024.101173. Online ahead of print. ABSTRACT PURPOSE: We evaluated DECIDE, an online pre-test decision-support tool for diagnostic genomic testing, …

Limits on Parental Discretion in Medical Decision-Making: pediatric intervention principles converge

Perspect Biol Med. 2024;67(2):277-289. doi: 10.1353/pbm.2024.a929023. ABSTRACT Pediatric intervention principles help clinicians and health-care institutions determine appropriate responses when parents’ medical decisions place children at …