“Just realising that I wasn’t alone… was profound”: a mixed-methods evaluation of a pilot peer-to-peer wellbeing program for carers of children with rare epilepsies
Orphanet J Rare Dis. 2025 Oct 21;20(1):524. doi: 10.1186/s13023-025-04036-0. ABSTRACT BACKGROUND: Caring for a child with a complex rare condition is widely acknowledged to have …