J Craniofac Surg. 2025 Apr 30. doi: 10.1097/SCS.0000000000011436. Online ahead of print.
ABSTRACT
The management of craniosynostosis is complex. This complexity is further complicated by the diverse phenotypes, syndromes, and functional issues that compound this. Although the objectives of craniofacial surgery are consistent, the current terminologies used to describe the clinical condition do not illustrate priorities and operational concerns. In addition, evidence suggests that specialists often adopt a narrow perspective when treating these conditions, a trend that underscores the need for a more integrated approach. We proposed a classification notion predicated on the patient’s initial presentation. The etiology and current treatment status are included with the presentation, if available. Furthermore, our proposed classification categorizes and builds a taxonomy leading to mapping a system with the aim of establishing a universal language grounded in objectives that unite the diverse specialists involved. The objective of this study was to create a language system for interdisciplinary communication and represent various aspects of an institutional cohort of craniosynostoses. The authors adopted the authors’ proposed taxonomy between 2015 and 2024 to develop a representation system using the institutional cohort as a prototype. The cohort representation system aimed to provide a pictorial representation that satisfied the following tenets: (1) simplistic, visually informative, and customizable. (2) Universally applicable to transfer information between systems and disciplines. (3) A visual summary of various facets. Building upon the categorization system, the authors previously established, the study introduces and applies the novel concept of mapping, detailing its development from the foundational categorization principles.
PMID:40305782 | DOI:10.1097/SCS.0000000000011436
