Palliative Care for Children and Adults With Inherited Metabolic Disease in Europe: An Underutilised Service for Supportive Treatment and Care
J Inherit Metab Dis. 2025 Nov;48(6):e70095. doi: 10.1002/jimd.70095. ABSTRACT Palliative care should be an integral part of follow-up for patients with life-limiting/life-threatening conditions, irrespective of …